Rett Syndrome

My daughter has Rett syndrome. Rett syndrome is a complex genetic disorder that expresses itself as multiple physical and neurological disabilities. It affects about 1 in 10,000 girls. The degree of disability varies, but historically most people with Rett syndrome remain highly dependent on care.

This is a story about my Daughter from the Toronto Star as Text or as Small Image, or as a Large 1 meg Image. The images will be shrunk to fit your browser. Expand them to their full size to read.

Here is my paper on "Optimizing Nutrition for Girls Affected with Rett Syndrome"

Here is an addition to my handbook on "Optimizing Nutrition for Girls Affected with Rett Syndrome" This paper is "Hypoallergenic Dairy Alternatives for Underweight Rett Girls."

This is a paper on Reflux problems Rett girls might have and suggestions as to how to detect and minimize it.

Rett Treatment.

Physical Training.

Have a look here for some papers on Physical Therapy especially the ones about using treadmills to accelerate learning how to walk http://www.umich.edu/~cmbds/current/index.html

Please consider donating to Rett Research. The Hospital for Sick Children in Toronto, Ontario, Canada houses The Research Institute. The Research Institute is one of the world's leading pediatric research facilities and is affiliated with the University of Toronto. Dr. B. Minassian is one of the leaders in Rett Research. His lab at the Hospital for Sick Children has made ground breaking discoveries for Rett Syndrome. The Dr. B. Minassian Rett Syndrome Research Fund has been set up to facilitate finding the causes and cure for Rett Syndrome. If you found the nutritional information within this web site useful please consider donating even a nominal amount to this fund. Donations by Canadians of $10.00 or over are eligible for tax receipts. Even small donations add up. Donations are completely confidential and secure. Please specify the "Dr. B. Minassian Rett Syndrome Research Fund" in the Additional Comments box when making donations to insure the donation goes to Rett research rather that the general fund.

Thank you for your help.
SJ White